Sunday, April 27, 2014

Not so subtle reminders

Someone died because of Evans and ALPS (which is a bit more complicated than Evans) this past week. As we get good news with Ric's numbers being pretty stable, there is still that reminder that he can die from it.

That thought is always far away from my mind. Our doctors are constantly telling us that as long as he is closely monitored, he won't die. Then, I hear about someone dying because of it and I feel like I can't breathe. Like there's an elephant sitting on my chest, when I really should be happy that Ric's numbers are stable!

Evans' world is unpredictable and scary. Today, we have Ric and he feels good and his numbers are pretty good. That is all that matters now. Death is not an option.

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