Normalcy?

For the first time, Dr. Eslin used the term remission this week. We went for Ric's checkup this week. He has been off medication for two weeks now. We were all very anxious to see what his numbers looked like. Even Dr. Eslin was anxious to see! Numbers came back good! There was a bit of a drop in platelets, but still in safe zone and everything else looked fantastic. Unbelievably so, white blood cells are behaving! They are usually the stubborn little bitches.

Of course,  I asked if Ric was in remission. To which the Dr replied "Yes, we are at that stage. However, we'll keep testing every two weeks for now in case something changes." So....yes we are kind of in remission, but waiting to see how his body will react unprotected (without meds).

His first few days off of prednisone, Ric was super tired. He came back from school one day and took a 3 hour nap! I texted our pediatrician and she said it was to be expected. Did you know that prednisone produces hormones our pituitary gland usually produces and when you are on meds, the pituitary gland is on vacation? So, when they took Ric off the meds, the pituitary gland realized it had to work again and it was working hard = Ric being tired. The things you learn! Other than that, he has been fine! No bruises, no petechiae, no nothing. We have a "normal" teenager in the house.

It's been a long year. We had stayed the course, we have followed every single direction given to us. We have dealt with every hand that has been dealt to us. We are ready to welcome a few weeks, hopefully months, of some normalcy. We have showed Evans who we are. Stay away for a while!